About

Pertubuhan Microtia Atresia Malaysia

Our Story

“Pertubuhan Microtia Atresia Malaysia (MAM) registered on February 15, 2019 stands as a platform where knowledge, life experiences and general information related to Microtia and Atresia, are shared within the Malaysian community i) born with Microtia and Atresia, ii) and parents/guardians of children born with Microtia and Atresia. Prior to this (2017), MAM ran as a support group called Microtia Atresia Support Group_Malaysia (MASG_Mal) that uses social media platforms and chat groups to reach out and create awareness. This support system aims to empower these individuals as they approach and/or deal with different phases (stages) of life. As every single Microtia case is different (although the MA grade may be the same), these parents/guardians and those born with these deformities must be continuously empowered with latest updated information so as to assist them in creating a better and meaningful life experience. Nonetheless, we neither provide any medical related / professional advice nor do we specifically recommend any form of treatment options and/or BAHA brands. We continuously remind our MAM members and audience that they need to approach their own medical team prior to deciding what is best for themselves or their children. On the other hand, MAM works closely with 3rd. parties (frontliners within the medical/health and academic industry) and publish relevant information as references, referrals and/or guidance that work both ways amongst the service providers, Malaysian public, M&A community and those born with Microtia and Atresia, nationwide.”

Our Vision

To own a premise where Pertubuhan Microtia Atresia Malaysia (MAM) is able to operate as a ‘Microtia Atresia Malaysia 1-stop Centre’ that provides holistic approaches in creating a productive society (with no limitations on potentials) through awareness / outreach nationwide programmes, active Q&A sessions, exploring and accessing new frontiers, and participating in community events.

Our Values

1. We aim to provide unbiased life-long support system to Pertubuhan Microtia Atresia Malaysia (MAM) members.

2. We aim to increase Microtia and Atresia awareness within the Malaysian society (nationwide).

3. We aim to reduce the effects of isolation resulting from insecurities and threats received from the surroundings.

4. We aim to work with MAM members and relevant 3rd parties to positively challenge unfairness.

Our Beliefs

1. Microtia and Atresia individuals can be successful in their endeavors, given the right support from the start.

2. Effective language and communication helps Microtia and Atresia individuals’ social, emotional and intellectual development.

3. When having to make choices, Microtia and Atresia individuals are mostly influenced by families with clear, balanced information.

4. Microtia and Atresia individuals should be involved and participate in decisions which affect them. 5. Microtia and Atresia individuals should be valued by society and have the same opportunities as any other disabled or able-bodied individuals.

The Logo (Ribbon)

The Badge

Inspired by the combined colours of Gold and Silver that is globally used to represent hearing disorders, hearing loss and hearing impairments’ on support ribbon lapel pins and pendants

Tagline

Celebrating Differences
#raikanperbezaan

Motto

Love. Strength. Hope.
#kasihkekuatanharapan

Steering Committee

Chairperson / Founder : Mdm. Sue Mohd Yusoff
Vice Chairperson / Co-Founder : Dr. Nurzaihana Zulkefly

Steering Committee Members

Central :
Mdm. Siti Nur’ Rahmah Muhab Shah (Sel)
Mdm. Farah Hani Othman (Sel)
Mdm. Michelle King Chu Liang (KL)
Mdm. Nurhidayah Baharin (KL)

Southern :
Dr. Noorul Basyirah Kamarulzaman (NS)
Mdm. Siti Naemah Mansor (Joh)
Mdm. Faridatul Aisyah Yusof (Mlk)

Northern :
Mdm. Nor Ermiliani Zulkafely (Ked/Per)
Mdm. Shu Fong (Pen)

Eastern :
Mdm. Suhaiza Kassim (Phg/Tgg)
Dr. Nor Hashima Wahab (Phg/Tgg)

MAM Spokesperson :
Aqil Alexander Rosli Amran, 25

MAMMembers Representing Different Types of Microtia

MAM Members
Adults and Children born with Different Types of Microtia and Atresia